The World of Avlis

On Wednesday, April 21, 2004 at about 14:00 EST the young son of Nithia passed away as the result of Batten Disease.



I've tried to write this for the last hour, and still can't figure out what to say, or how to say it. At times we all become wrapped up in our own little worlds, both online and offline. But when something like this happens, it jolts all of us.



My understanding is the arrangements are next week. Any persons that are interested in making a donation to aid her with the arrangements, please contact me via PM.



Any persons intrested in learning more about Batten Disease should go to the Batten Disease Support and Research Association. The have more information about this disease, which is always fatal in cases involving children. Although they are able to diagnose it, there is currently no known cause of this disease, nor treatment for it.